2015年12月17日星期四

Recovery Path: Voice from a PKD patient

I am a Polycystic Kidney Disease (PKD) patient. Through a systemic treatment, I control the disease very well now and live a normal life just like every healthy person. Here I want to share my treatment experience to all of the patients with PKD and hope this is useful for them.

PKD is a genetic kidney disease with a high heritability. If one of parents has the disease, the chance of inheriting to every child is 50%. But in, but in some cases, it is caused by gene mutation. I belonged to the former one and inherited PKD from my father. Just like all of the girls, I spent the first decades of my life happily and normally. I blessed that I was a lucky dog every day and the 50% of chance did not drop on my head. However, in my regular checks, numerous cysts were observed through ultra-sound exam and I was diagnosed with PKD when I was 26 years old. At that moment, I felt that the world was upside and down. In the latter days, my blood pressure began to rise, had mild back pain.

Witnessing father’ sufferings in fighting with the disease, I really did not want to repeat his path. I still remembered that he had to give up his job and went to dialysis center 3~4 times a week. He became a man of few words and he thought he become a burden to mother and me. Besides the great mental pressure, he had to the sufferings of dialysis such as itching skin, dizziness, hypotension, infection, and anemia and so on.

From my father’s experience, I knew that there were no effective treatments in the western medicines. When the patients do not have symptoms, they have nothing to do to prevent the disease progression. However, with the cysts enlargement, a series of symptoms will appear persistently such as hypertension, hematuria, back pain, enlarged kidneys. Then, their doctors just prescribed them some medicines to remit their symptoms and told them just wait for dialysis relentlessly. I did not want to end my life just like my father and I wanted save myself and find a better solution for all of the patients with PKD. I searched on the internet day and night and I wanted to find a new therapy. On the website, a special therapy attached my eyes: Micro-Chinese Medicine Osmotherapy. Although I had heard of traditional Chinese medicines, I did no the therapy at all. The experts explained to me that it was a further development of traditional Chinese medicines and it was an external therapy instead of oral taken. I eagerly wanted to try the new therapy, but I did not believe the therapy for China was far from India and it cost so much money.

However, after about 3 months’ careful consideration and communication with the experts, I decided to have a try.

To be lucky enough, after 3 months’ Micro-Chinese Medicine Osmotherapy, my symptoms disappeared and the cysts stop enlarging and the big ones shrank a little. The experts told me that as I still do not have serious renal injury and received the timely treatments. If I keep the present disease condition, my disease will not develop into Renal Failure.


Here I just want to tell all of the patients with PKD a new therapy, I wish all of you can live a happy and normal live just like me.

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